Sweet Virginia's Journey

It was one year ago today,  April 24, 2019,  that Virginia lost the ability to see out of her left eye.  One year ago today, I was teaching at school, and Virginia came up to me and said, "Mom, I can't see out of my left eye!"  Little did we know what was to come, but it has been a tough journey, and one we could have never foreseen.  We are still learning and evolving with this rare disease called, MOG, and it is amazing to see what all our sweet girl has been through in a year. Virginia has so much love for Gus the therapy dog.  He has made her hospital stays so much easier! She now has a port in her chest for her infusions of IVIG .  She has to have infusions of IVIG every four weeks.  This is her current treatment after her first treatment, Celcpept, failed.  She lost the ability to walk for over a month, and this medication was what brought back her ability to walk.  She still struggles with fatigue, pressure in her chest that feels like she is being squ