Sweet Virginia's Journey

As so many of you have followed and joined our journey, we wanted to share where we stand now.  Our sweet Virginia has been officially diagnosed as MOG ( myelin oligodendrocyte glycoprotein) positive.  Basically,   MOG is the body attacking its own  myelin, which is the outer covering of our nerves.  There is no actual cure, we treat and manage.   We went to Boston specifically for an appointment with   Dr. Levy ,  who is the expert in the field of MOG.   This trip had brought us so much anxiety for so many reasons, but when we sat down in his office, he immediately made us feel like we had known him forever, and that together we were going to make this happen.   He immediately confirmed her MOG diagnosis, and we started talking about a plan.    He took us through all the options, and we decided that the best place to start was to put Virginia on CellCept for at least the next three years.  He told us that CellCept would not bring any of her current symptoms back.  He said that h